What do you do when hope is taken away from you? You become desperate, in a few days I’ll be digging in the sand looking for hope somewhere else.
Hope
Published by PainedFairy
God, where do I start... given I want to tell and write about rare disease and living in pain that is what I'll be brutally honest about. Im a 45 yr old single mum to a 6 year old who apparently wasn't possible after having a rare disease called acromegaly which wasn't diagnosed for 9 years. The growth hormone served me well and by this a mean it acted like a steroid so partying and holding down a good job was possible for a long time. My friend used to say to me just try and stay in on your own for one night and I would say no way! In Jan 2017, I had the pituitary tumour removed through my nose from which was successful, but 10 days later, i developed Hyponatremia which is basically a deaths door level of sodium causing me to nearly die in my mums arms and do a short stint in a coma. Life was never the same after this for me and although I tried. I had suffered for too long having to spend days on end in bed and ended up with and 10 years later social anxiety. I never let people down but now I struggle to stay true to a commitment and 9 times out of 10 will try and get out of it. Best way to get me out is by 6pm!!!! View all posts by PainedFairy
PainedFairy 