I’m getting used to WordPress, so there is a bit of duplication from yesterday – but please read on………..
So there is little bit more than just my opening headline and to make this work I have to lay all my cards on the table, demons et al.
The brain surgery ruined me in a sense, halting my metabolism, creating organic mood disorder and changing the person I’d spent 35 years being. Some of you may be thinking, at least it’s not MS or cancer but in my eyes it’s worse, no one can treat me or give me an answer, my life is taken day by day and has been for the last 10 years effecting my work, social life and most importantly the ability to run around and do outside things with Hattie.
Today, this is what I have been diagnosed with and I want to beat all of it, but it is going to be slow and I’m doing this blog as I am very competitive when put in front of someone an am challenged, so you my readers need to challenge me!
- Sjogren’s Syndrome – an autoimmune disease called Sjogrens Syndrome which in English, my body is attacking the glands that produce moisture so basically everything is dry…. google it!
- Neuropathy – Chronic nerve pain in my legs and arms on exertion, numb feet, hammer toes (I have beautiful feet)
- Organic mood Disorder – basically a bit like bi-polar but created due to a change in the brain from surgery. This translates into depression and severe anxiety.
- Occipital Neuralgia – chronic headaches due to inflammation of the occipital nerve at the base of the skull.
- Trigeminal Neuropathy – the triangle of nerves around the right eye are always painful and numb especially when tired.
I take over 150 tablets a week!
It’s really important that I get the right people on board and I’ve had some really touching messages from people wanting to help. I’m approaching this like a project (dull I know) so will be seeing PTs and therapists over the next couple of weeks, hell I might actually get everyone together and have a brain storming session we will see.
On an exciting note, my ankle ligament reconstruction is coming on leaps and bounds so next week I am getting into the anti-gravity running machine called the Ultra G guided by Vicky my physio at Mount Alvernia Guildford. It basically takes your body weight so you can run as if you were 8 stone WICKED!
Is it worth doing a crowd fund? Thoughts on a postcard please…….